We recently had the incredibly brave Christie Newport on our show and we asked her to write up a short piece sharing her experience living with Melkersson-Rosenthal syndrome:
Growing up I had a normal, happy childhood until the age of seven when everything started to change! I woke up with a cold sore little realising that it would mean my life would never be the same again.
It simply refused to go, in fact it spread and created an unsightly sore right across my top lip, my mum began what would become routine trips to my GP trying desperately to get to the bottom of what the problem was. We tried creams, anti-viral medicines, basically anything and everything available to us. It was only when we were referred to the hospital that we found out it wasn't simply the cold sore virus but something much worse, something that baffled even the specialists.