The parents of a two-year-old girl from Chelmsford with a rare blood disorder are campaigning for her treatment to be made available on the NHS.
Indie Smith was diagnosed just before her first birthday with atypical haemolytic uremic syndrome (aHUS) - an extremely rare disorder which only affects around 150 patients in England.
Indie takes a drug called Eculizamab to treat the condition. It's currently paid for as part of a research programme, but that finishes later this year and the government has not approved funding for the drug on the NHS.
The cost of Eculizamab is £250,000 per patient, per year and health ministers have asked the National Institute for Health and Clinical Excellence (NICE) to decide whether the benefits justify the cost.
Without Eculizamab Indie's father, Gavin Smith, says his daughter faces a "lifetime on dialysis".
More information can be found on Indie's website www.helpindie.co.uk.