Kaisha Morris is appealing for help after her son Joey became one of only 800 people in the world to be diagnosed with the rare blood condition Diamond Blackfan Anaemia
His best hope of a long term cure is a bone marrow transplant from a stranger, through the charity Anthony Nolan.
Joey was born early in Northampton General Hospital via an emergency caesarean and experienced various health problems from the start of his life.
– Kaisha Morris
He was born with a hole in his heart and couldn't open his eyes for the first two weeks. He was just so floppy and lethargic. We all just assumed he had problems because he was born early.
Between 5 and 8 weeks Joey's condition took a turn for the worst.
He suffered complete heart failure and his lungs were filled with fluid. He was in intensive care on 100% oxygen and was reliant upon a machine to keep him alive.
Having undergone several tests and misdiagnosis, Joey was finally diagnosed with Diamond Blackfan Anaemia in February.
Joey's four year old sister Isabella was found not to be a match so the family turned to the Anthony Nolan charity in the hope of finding an unrelated donor.
Blood cancer charity Anthony Nolan uses its register to match potential bone marrow donors to blood cancer patients in desperate need of a bone marrow transplant.
Joey will need a transplant in a couple of years' time but until then the family are throwing themselves into raising awareness of the register.
- To join the register all you need to so is fill in a form and provide a saliva sample.
- Anthony Nolan say they are urgently asking for more young men to come forward
- To join you need to be between 16 and 30 and in general good health
- For more information visit www.anthonynolan.org
Jonathan Wills spoke to Ann O'Leary from the UK's blood cancer charity and bone marrow register Anthony Nolan and she explained how people can sign up.
Click below to see Jonathan's interview