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Essex schoolboy's mission to improve understanding of sight loss

Sam Baker wants more people to understand his condition. Credit: ITV News Anglia

An schoolboy from Essex is on a mission to improve understanding about the rare condition that's robbing him of his sight.

Sam Baker, dad Darren and brother Jamie all suffer from the same disease.

It's called Retinitis Pigmentosa and it causes the death of the retina, tunnel vision and eventually blindness.

Sam, from Clacton-on-Sea, wants to raise awareness and understanding about the use of things like white canes and guide dogs - to emphasise that partially sighted people use them too.

"People might be a bit confused because I look around at different things. It's like at the cinema, they say 'how can you look at the films if you're blind?' Well, I'm not blind."

– Sam Baker
Sam Baker at school in Essex. Credit: ITV News Anglia

"I am so proud of Sam for wanting to make people understand as he would not only be making his own life a little bit easier but that of everyone who suffers sight loss."

– Karen Baker, Sam's mum