22 year old Bernice Perry has been waiting for a heart and lung transplant for nine months. Watch Tom Barton's full interview with her.
Watch our interview with Ed Owen, from the Cystic Fibrosis Trust. We began by asking him just how many people are living with cystic fibrosis in the UK.
A young woman from Haverhill in Suffolk is calling for more people to join the organ donor register. Bernice Perry has been waiting for a heart and lung transplant for nine months.
In that time she's seen one of her friends die of cystic fibrosis -- the same disease that affects her. To mark Cystic Fibrosis week, she's been speaking to our reporter Tom Barton.