Only two babies in every million are diagnosed with Cockayne Syndrome. Jodie Barden's daughter Ella has the condition, now Jodie has discovered her unborn child carries the gene which causes the illness too.
Jodie said: "Obviously devastated with Ella they offered us a test to have this one checked. It’s been a different pregnancy and I thought it’d be a healthy baby and it just knocked us out sideways and it was heartbreaking to go through that again."
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