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Mum's heartbreak for her children

Jodie Barden's six-year-old daughter Ella has a rare genetic disorder which means she has a life expectancy of just 12. Now her unborn child has been diagnosed with the condition too.

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Jodie: You want to cuddle them and never let them go

Jodie, described her emotions at the prospect of losing her daughters.

It’s heartbreaking, absolutely heartbreaking because you never think it’s going to happen to you. You never think you’re going to lose your children. You never think you’re going to plan their funeral before you’re worrying about your own. It’s heartbreaking. You want to cuddle them and never let them go. It does make you appreciate life and do as much as possible.

– Jodie Barden

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