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Mum's heartbreak for her children

Jodie Barden's six-year-old daughter Ella has a rare genetic disorder which means she has a life expectancy of just 12. Now her unborn child has been diagnosed with the condition too.

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Mum's heartbreak for her children

Jodie Barden: Daughter and unborn child have rare genetic disease

Jodie Barden's six-year-old daughter Ella has a rare genetic disorder which means she has a life expectancy of just 12.

Now Jodie, 27, from Witham, has just discovered that her unborn child, also carries the gene for Cockayne Syndrome.

It's a life-shortening, genetic disorder. Most sufferers die before they become teenagers. The syndrome affects two babies in every million and is incurable.

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