Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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Increasing cloud and rain overnight. Blustery and cold tomorrow.
Events are taking place in Cambridge, Norwich, Colchester, Southend and Lowestoft today, to mark Holocaust Memorial Day.
Cloud will increase through the day with rain arriving by dawn.