Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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This afternoon will see squally showers- these will be occasionally heavy. Becoming very windy later with gales.
Further one in eight expect to be aged between 71 and 80 years when they finally stop work, according to survey.
Starting dry today before further rain or showers blow in. Becoming very windy through the afternoon with gales possible in places.