Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
More top news
The Met Office has issued a yellow weather warning for the risk of snow and ice in parts of the Anglia region on Sunday night into Monday.
Touts for unlicensed punt operators could soon be banned from parts of Cambridge.
A few wintry showers are possible during the evening, but most places clear with frost developing.