Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
More top news
UKIP have made further gains in the local elections in the Anglia region and the Conservatives have won back control in Peterborough.
Hundreds of council workers have gathered in sports centres and town halls across the region to count the votes in the 2016 local elections.
The votes are being counted in 22 councils across the Anglia region in the biggest test of political opinion since the General Election.