Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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Cold with wintry showers this evening and during Monday.
A woman in her 20s has died after the car she was driving crashed into a water-filled ditch. Her passenger managed to escape.
A bright start but there's rain on the way.