Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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Mild, generally dry and breezy.
The family of a teenager who was stabbed to death as he walked home from college in Chelmsford say they are inconsolable.
Dry and chilly overnight. Winds strengthening Sunday and becoming milder.