Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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Police in Essex have launched an extensive search for two teenage girls from Maldon who've gone missing.
Mainly dry during this evening with some late sunny spells, but there is the chance of the odd sharp shower.
After some heavy rain, it will clear and become drier, brighter and warmer later. Top temperatures of 19°C