Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He's been picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
The award recognises the courage of young children who suffer with complex conditions and life threatening illnesses.
Six-year-old Johnathan will be presented with the bravery award by Prince Harry tonight at the awards ceremony in London.
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It will be a cooler and cloudy day with the outside chance of a shower. Highs of 16 deg C.
Becoming drier by this evening with the chance of a late sunny spell.
The Chief Executive of Southend United has told ITV News Anglia that his players deserved to win promotion to League One at Wembley.