Johnathan He from Milton Keynes has a rare genetic condition called x-linked CDG and congenital glaucoma.
He was picked from hundreds of nominations from across the country to win the category of Inspirational Child in the national WellChild Awards 2013.
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A cloudy start with outbreaks of rain but clearing to the east by early afternoon. Drier later with some long spells of sunshine.
Mother, whose son was murdered after being groomed online, warns of dangers of the internet
Turning cloudy and becoming windier later. Patchy rain overnight.