Madeline Reeder from Lowestoft in Suffolk is not even 4-years old yet and already she has had 17 operations.
She has a medical condition so rare that only 7 people in the world's population of seven billion have it.
Her a chromosomal abnormality is so rare it doesn't even have a name. The nearest experts can get is "X13 mosaic unbalance translocation".
Madeline was born with life-threatening problems with her intestines, a heart defect and a cleft palate. She's also at risk of developing eye cancer.
Madeline has to be fed directly into her stomach by a tube and is currently unable to eat.
Madeline's mum Sammy is now training to run the London Marathon next month, to raise money for Genetic Disorders UK.
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Rain will turn steady and occasionally heavy after midnight before clearing early tomorrow. Sunnier but colder weather then returns.
The very mild weather will continue during the rest of today before it turns wet overnight. Tomorrow will be sunnier but also colder.