Little Madeline Reeder from Lowestoft has a medical condition so rare that only seven people in the world's population of seven billion, have it.
It's so rare it doesn't even have a name. ITV News Anglia's Natalie Gray went along to meet Madeline and her family. Click above to watch her report.
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Sleet and snow overnight in some parts of the Anglia region leading to some settled snow. Wintry showers on Saturday.
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Cloudy skies with a southeasterly breeze picking up and rain reaching western counties by dusk, perhaps snow in places later.