Little Madeline Reeder from Lowestoft has a medical condition so rare that only seven people in the world's population of seven billion, have it.
It's so rare it doesn't even have a name. ITV News Anglia's Natalie Gray went along to meet Madeline and her family. Click above to watch her report.
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Today was the hottest day of the year so far but temperatures will be down a little tomorrow with the risk of thunder.
A sizzling day for the Anglia region with temperatures rocketing into the mid 30's.
It's definitely hot out there today, with temperatures in some parts of the region hitting 32°C! Here are YOUR best tips for keeping cool.