Little Madeline Reeder from Lowestoft has a medical condition so rare that only seven people in the world's population of seven billion, have it.
It's so rare it doesn't even have a name. ITV News Anglia's Natalie Gray went along to meet Madeline and her family. Click above to watch her report.
More top news
Cloudy with more rain. This rain will become increasingly heavy and persistent during the early hours to give a wet start to Sunday
Ice hockey rivals from Peterborough and Milton Keynes prepare for their local derby match with an unusual challenge away from the rink.
Today will be mostly cloudy and mild with occasional rain, more persistent overnight