Little Madeline Reeder from Lowestoft has a medical condition so rare that only seven people in the world's population of seven billion, have it.
It's so rare it doesn't even have a name. ITV News Anglia's Natalie Gray went along to meet Madeline and her family. Click above to watch her report.
More top news
Ipswich Town legend Kieron Dyer sits down with ITV News Anglia's Donovan Blake to look back at his extraordinary career.
The death of man in Witham in Essex is being treated as unexplained after a body was found in a river.
Turning cold and frosty overnight. Staying dry for much of the weekend but a snow warning comes into force on Monday.