Madeline and her family have been supported by the charity Genetic Disorders UK, which is dedicated to improving the quality of life for people and families affected by genetic disorders.
Click above to watch ITV News Anglia's Jonathan Wills interviewing Laura Pattison from the charity.
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The Chancellor will present his Autumn Statement and Spending Review to the House of Commons on Wednesday.
Wednesday should stay mainly dry with sunny spells, although perhaps with occasional showers near the Norfolk coast. Brisk winds.
British Lion included in Cambridge University line-up for traditional warm-up