Little Madeline is one in a billion

A little girl from Suffolk has a medical condition that is so rare that only seven people in the world have it. It's so rare it doesn't even have a name. Madeline Reeder has already had 17 operations and she is only 3-years old.

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Support for families with children with genetic disorders

Madeline and her family have been supported by the charity Genetic Disorders UK, which is dedicated to improving the quality of life for people and families affected by genetic disorders.

Click above to watch ITV News Anglia's Jonathan Wills interviewing Laura Pattison from the charity.

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