Madeline and her family have been supported by the charity Genetic Disorders UK, which is dedicated to improving the quality of life for people and families affected by genetic disorders.
Click above to watch ITV News Anglia's Jonathan Wills interviewing Laura Pattison from the charity.
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Any early rain should clear, leaving a dry morning. Some brighter spells could develop and it will be feeling very mild. Highs of 16 deg C.
Teams searching for the missing RAF serviceman Corrie McKeague have admitted they're running out of logical places to look for him.
Cloud will thicken this evening but most places will remain dry. However some rain will creep in early Monday morning. Lows of 8 deg C.