Madeline and her family have been supported by the charity Genetic Disorders UK, which is dedicated to improving the quality of life for people and families affected by genetic disorders.
Click above to watch ITV News Anglia's Jonathan Wills interviewing Laura Pattison from the charity.
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Councils are examining their budgets and deciding where savings and cuts can be made as government funding is to be cut by 14% next year.
Rain will turn steady and occasionally heavy after midnight before clearing early tomorrow. Sunnier but colder weather then returns.
The very mild weather will continue during the rest of today before it turns wet overnight. Tomorrow will be sunnier but also colder.