Watch Hannah Pettifer's report below.
The parents of two girls diagnosed with a rare form of dementia have spoken of the pain their family has endured.
Emily and Sarah Bushaway were just six and 10 when they were diagnosed with Niemann-Pick disease, a rare form of childhood dementia.
A genetic condition, it's estimate that 700 people in the world are believed to have it.
Their parents Mark and Lisa have been talking about the impact it's had on the family watching their two daughters, who are believed to be the youngest siblings ever to be diagnosed, being gradually taken away from them.