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WATCH: Windermere woman's campaign for drug trial

Ruth Adorian has Motor Neurone Disease. Despite her condition she is director of the charitable organisation 'The Association for the Independence of the Disabled'.

Along with her husband Paul she is campaigning to raise £450,000 to fund a clinical drug trial.

Fiona Marley Paterson has this report

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More information about Motor Neurone Disease

Ruth Adorian has Motor Neurone Disease Credit: ITV Border

Ruth Adorian from Windemere has Motor Neurone Disease.

Along with her husband Paul, Ruth has set up the Association for the Independence of Disabled People charity to support people living with the rare condition.

For more information, click here to visit the website.

Motor neurone disease is when specialist nerve cells in the brain and spinal cord fail to function correctly.

Motor neurones control important muscle activity, such as:

  • gripping
  • walking
  • speaking
  • swallowing
  • breathing

People with the rare condition will find some or all of these activities increasingly difficult.

More information about the disease can be found on the NHS Choices website.

Further advice and support can be found at the following webpages:

Campaign to raise almost £450,000 for a drug trial

Ruth Adorian has Motor Neurone Disease Credit: ITV Border

A woman from Windermere who has Motor Neurone Disease hopes to raise almost half a million pounds for a clinical drug's trial.

Ruth Adorian and her husband, hope the drug Liraglutide will help those with the muscle wasting condition and are supporting research at Lancaster University.

The drug is currently used to treat diabetes but it is thought that it could also help ease the symptoms of Motor Neurone Disease.

Ruth and her husband Paul have already raised £100,00 but they're hoping to raise £450,000 in total in order for the drug's trial to go ahead.

Despite her condition, Ruth is a director of a number of companies and along with her husband Paul she set up a charity - the Association for the Independence of the Disabled.

The organisation was launched to provide a focus for the needs of the ever-increasing number of disabled people who still, all too often, have difficulties in accessing even the most basic facilities in the course of their lives, particularly where severe disability is concerned.

Motor Neuron sufferer scales mountain for charity

He may have spent 175 days in intensive care at the West Cumberland Hospital last year, but this time Fleck Ditchburn was back at the hospital - willingly and with a smile on his face.

Fleck has Motor Neurone Disease and he was back to deliver some new equipment, all paid for by his fundraising for the hospital.

He raised some of the money by being pulled up a mountain in his wheelchair.

You can watch the full report from Samantha Parker below.

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