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Department of Health: Difficult decisions hard for patients and families

These are incredibly difficult decisions and we know how hard they are for patients and their families. It is right however that clinicians, and not politicians, make these assessments as they are best placed to do so based on the evidence available and their clinical expertise. Across the world health systems are facing growing pressures to fund new treatments arising from medical science. Through the UK's investment in rare disease research, genomics, and NHS England's new models of specialised commissioning, we are leading the way in tackling this global challenge.

– Department of Health spokesperson

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Abuse survivor: You couldn't report it because they wouldd laugh at you

On the day that two police forces in our region were told to improve the way they handled cases involving vulnerable children, a young women, abused from the age of 11, has decided to go public for the first time and speak of her ordeal.

Sarah Wilson from Rotherham was first attacked in a school playground by a man in his thirties, then groomed and systematically abused. She's written a book telling of her life with grooming gangs and how she was ignored by the authorities.

A new report today from her majesty's inspectorate of constabularies has revealed that only a third of 600 child abuse cases were handled to a good standard.

Michael Billington has the story and has been to meet Sarah:

Man arrested after four hours on roof

A man has been arrested after spending over four hours on the roof of a property in Grimsby.

He was arrested by officers investigating the stabbing of a 28-year-old man earlier today. The man's injuries are not thought to be life-threatening.

A 13-year-old boy was also arrested in connection with the stabbing and he remains in police custody assisting enquiries.

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Man jailed for 'one punch' manslaughter

A man who killed a work colleague with one punch during a night out in Harrogate has been jailed for six years.

Phillip Patrick Begley Credit: North Yorkshire Police

Phillip Patrick Begley, aged 44 and of Wellington Road, Bridlington, was found guilty of the manslaughter of Paul Morrison at Leeds Crown Court on Thursday 2 July 2014, following a four-day trial.

Begley was also found guilty of assault occasioning actual bodily harm for an attack on Paul’s friend, Peter Bell, and was sentenced to six months’ imprisonment to run consecutively.

Paul Morrison Credit: North Yorkshire Police

The men had met in Harrogate on the evening of 1 November 2014, where they went for a drink in the Wetherspoons Winter Gardens pub, in Parliament Street.

At around 7.30pm, Paul and Mr Bell were in the beer garden at the back of the pub when they were approached by Begley. He punched Paul in the face and he fell backwards hitting his head on the base of a pillar.

Paul, who was aged 51 and from Burton Leonard, sustained a serious head injury and was taken to Harrogate District Hospital, where he spent almost three weeks fighting for his life before he passed away.

Mr Bell suffered facial injuries in the incident, which required hospital treatment.

I hope Paul’s death highlights to people that getting involved in any kind of violent behaviour can have a tragic outcome.

A family has lost a loved one, and Philip Begley is spending the foreseeable future in jail all because of one punch.

– Senior Investigating Officer, Detective Chief Inspector Pete Martin

NHS England defers decision on Morquio drug by '12-16 weeks'

NHS England has today deferred a decision on Vimizim - the drug required by six-year-old Morquio syndrome patient Sam Brown from Otley - by a further 12-16 weeks.

Adam Fowler reports:

After a wait of more than six months, NHS England it will make its final decision on funding after after NICE, the National Institute for Health and Care Excellence has concluded its report into the drug.

NICE has said that doubts exist about the benefits and cost of this treatment in its recent draft guidance, and is therefore “minded not to recommend” the treatment for patients with Morquio A Syndrome. The manufacturer now has the opportunity to present additional evidence to NICE to address these concerns. If NICE ultimately does recommend the NHS funds this treatment then NHS England will do so. NHS England believes the manufacturer has an ethical duty to continue to support those patients it enrolled in clinical trials of elosulfase alfa whilst the NICE process is still ongoing.

– NHS England

Sam Brown received his last free round of treatment last week.

BioMarin, the company which provides Sam's treatment said it was "disappointed" by NHS England's decision.

BioMarin is disappointed by NHS England’s decision not to provide interim funding for Vimizim. Vimizim is the only enzyme replacement therapy for people with Morquio A syndrome, a rare genetic condition that is progressively degenerative and life limiting. BioMarin continues to work closely with all stakeholders to ensure that a long term funding solution for Vimizim is found for all patients with Morquio A syndrome, so that they are able to access this treatment in England.

– BioMarin spokesperson
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