Cystic Fibrosis Trial

Cystic fibrosis trials to begin
Cystic fibrosis trials to begin Photo: Calendar News

Trails are due to begin on a new treatment for cystic fibrosis.

The medicine replaces the faulty gene which causes mucus to form in the lungs. This makes breathing difficult and means people with the condition need physiotherapy twice a day.

Despite physiotherapy the mucus still damages the lungs and eventually kills the patients.

Money to fund the trials has been raised by Calendar viewers like Toni Hannon from Ripon. Her son Evan has cystic fibrosis and she climbed Ben Nevis to raise money.

When Evan's ill he coughs, vomits, has night sweats, lethargy and panic attacks.

She says

He was born with cystic fibrosis and he will die with cystic fibrosis but it'll just become more manageable and the heavier effects of the disease will be minimised...it's a little light at the end of the tunnel

– Toni Hannon
  • Cystic fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
  • 9000 people in the UK have the condition
  • Each week, five babies are born with it
  • Two people a week die from it.
  • It affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

CF Trust