Alfie Andrews was born with hypoplastic left heart syndrome which effectively means he has half a working heart. The four-year-old from Lincoln has just had his third heart operation at Glenfield and his parents say they don't want to have to travel further for care in the future.
NHS England announced plans last summer to stop heart surgery at Glenfield children's Heart unit and a 16 week public consultation is underway. It's because three surgeons there aren't doing 125 operations a year each in line with safety and quality targets.
The hospital trust though argues that 'quality of care should come ahead of quantity of operations'. They also argue numbers are being used in an inappropriate way.
Dr Frances Bu'Lock, Consultant East Midlands Congenital Heart Centre: