Live updates

Cystic Fibrosis Trust's reaction to faulty baby tests

The CF Trust is aware that there was a small risk of an error having occurred in the testing for cystic fibrosis through the newborn screening centre at Sheffield, and we understand that this fault was found to affect a very small number of results. We welcome the decision by NHS Yorkshire and Humber to inform parents that may have been affected by this testing and advise parents that have any concerns at all about their child's health to contact their GP."

– Jo Osmond, Cystic Fibrosis Trust.

Advertisement

NHS statement on faulty cystic fibrosis tests

In December 2011 regular on-going quality checks identified that a new analyser, used to measure blood samples from newborn babies across South Yorkshire and the East Midlands for cystic fibrosis, recorded a very small number of inaccurate results.

“While it is not possible to retest the cystic fibrosis samples, following additional checks and regular monitoring, we are now confident that the testing was reliable so no automatic additional testing is necessary.

“While we have successfully identified and corrected the fault we are sorry for any worry this may cause.”

– Professor Paul Johnstone, Director of Public Health for NHS Yorkshire and the Humber

Advertisement

Cystic Fibrosis treatment to be trialled

Trials are due to begin on a treatment for cystic fibrosis which replaces a faulty gene and stops mucus forming in the lungs.

Toni Hannon is from Ripon and her son Evan has the condition. When he's ill he coughs, has night sweats and panic attacks, vomits and is always tired.

She's raised money in the past for research into the illness.

Advertisement

Today's top stories