Live updates

Advertisement

Mike and Zara Tindall expecting second child

Zara, Mike and Mia Credit: Press Association

Otley's Mike Tindall and wife Zara are expecting their second child, a spokeswoman for the couple has said.

Equestrian champion Zara - the Queen's granddaughter - and former England rugby player Tindall are said to be thrilled with the news.

The couple already have a daughter Mia, who is nearly three.

The new baby, due around late spring, will be the Queen and Duke of Edinburgh's sixth great-grandchild.

Well wishers arrive in Otley ahead of Olympic cyclist's wedding

Crowds of people have started to arrive at a church in Otley ahead of the wedding of world champion cyclist Lizzie Armitstead.

Crowds arriving at a church in Otley ahead of Lizzie Armitstead's wedding Credit: ITV Yorkshire
Team Great Britain's Lizzie Armitstead after the Women's Tour de Yorkshire Credit: Press Association
Wedding cars outside the Otley church Credit: ITV Yorkshire
Credit: ITV Yorkshire

The Olympian, who won silver at London 2012, is due to marry professional cyclist Philip Deignan at The Bridge United Reformed Church. He popped the question last September after a year of dating.

Advertisement

Victory as Morquio drug given final signing-off

After a long-fought campaign, the Vimizim drug to treat those with the ultra-rare disease Morquio Syndrome has today received final sign-off from health authorities.

Announcing the decision this morning, the National Institute of Health and Care Excellence (NICE) has published final guidance saying that Vimizim is now officially approved for use in the UK and can be funded by NHS England.

The #FundOurDrugsNOW campaign, led by Leeds North West MP Greg Mulholland, has spent the last 13 months demanding the drug is approved as soon as possible.

Mr Mulholland worked closely with families and charities, including the family of Otley seven year-old Sam Brown, to campaign for today’s news. Sam Brown is one of just 88 people in England with Morquio Syndrome.

Sam Brown suffers from Morquio Syndrome Credit: ITV Yorkshire

"This is exactly the news we wanted and I am delighted for Sam and for all the people with Morquio who will now get access to the treatment they need.

"For 13 months, we have repeatedly demanded ministers, NHS England and NICE do what 20 other European countries have already done.

"And today, after a long-fought campaign, we are finally there.

"It is a great victory for people power and all those involved in the campaign including the MPS Society and families up and down the country.

“I am delighted for Sam Brown. Aged just seven, he has already been through so much. His parents Katy and Simon deserve so much credit for keeping up the fight.

"It has been a real pleasure to have worked with them and the announcement is a well-deserved early Christmas present.”

– Greg Mulholland MP

We are relieved and delighted by today’s decision, and would like to thank Greg for his unwavering support.

"Without him, and the work of the MPS Society, none of this would have been possible.

"We would also like to thank our local community for the incredible and humbling support that we have received over the past year.

"We are now looking forward to a relaxing family Christmas, celebrating this victory and a much brighter future for Sam.”

– Katy Brown, Sam's mther

Treatment for rare genetic condition rubber-stamped

The National Institute for Health and Care Excellence (NICE) has approved the use of the drug Vimizim to treat Morquio Syndrome, a rare and life-limiting genetic condition.

Sam Brown will now be able to receive treatment for Morquio Syndrome Credit: Press Association

Today's news will be welcomed by the family of 7-year-old Sam Brown, who has the condition. Sam, from Otley in West Yorkshire, is one of just 88 people in England with Morquio condition. The drug was approved on a Europe-wide level in April 2014 and is already in use in 20 other European countries, but attempts to make it available in England have seen repeated delays.

However in November NICE reached an agreement with the NHS and the manufacturer, BioMarin, to provide Vimizim to patients who have the degenerative disease.

Morquio Syndrome is a degenerative disease where patients with the condition appear healthy at birth, but within 24-36 months start to show symptoms of severe problems. Average life expectancy of someone with Morquio Syndrome is just 25 years.

Load more updates