- ITV News Central reporter Jane Hesketh
Having a child with a terminal illness or a life-limiting condition is the worst possible situation for any parent. How do you accept that situation and learn to live with it?
At the Donna Louise hospice in Trentham in Stoke-on-Trent, their attitude is 'life is for living'.
They actively encourage their children to do as much as they possibly can, and to embrace every opportunity.
Chloe and Charlotte are both 18 and best mates. They have both been coming to Donna Louise since they were tiny.
Technically they should move onto the adult hospice world now, but thanks to a decision by the trustees to build a young persons unit, they both know they won't have to move on.
Charlotte told us what the hospice means to her:
Both the girls raise money for the hospice, which they say is a home from home, by selling their paintings.
Charlotte is currently struggling to raise enough money for a wheelchair that meets her needs.
- See Chloe and Charlotte's story on ITV Central News tonight at 6pm.
- READ MORE: This year marks the 50th anniversary of the Hospice movement