A young woman from Worcestershire says she will probably die - and soon - if she can't raise two hundred thousand pounds for an operation.
Antonia Payne-Cheney, who is from Eckington, has a rare hereditary condition that means the weight of her skull is crushing her brain stem.
The twenty-year-old has Ehler's Danloss-Syndrome, a rare connective tissue disorder that's wrecked virtually every bodily function and made a full time nurse out of Mum Victoria.
Once a healthy, active teenager, at twenty, bedridden and fed through a tube, the syndrome has already robbed Antonia of a lot of life.
But a procedure now available in Spain could fix perhaps its most serious complication.
The ligaments in her neck are no longer strong enough to support her skull and it is pressing down on her brain stem, worsening many of her symptoms.
The surgeon will lift her skull into the correct position, and then fix it in place with a titanium rod. But he says it needs to be done now, and it's going to cost £200,000.
Antonia’s mother says focusing on the chance of the treatment, is keeping their family going. The family have set up an online fundraising page which has so far raised £55,000.
Yet despite an adolescence filled with sickness and pain, Antonia remains positive about her future, and wants to live her life to the fullest extent she can.
You can also follow Antonia's progress on her Facebook page.