Two-year-old Gaurav Bains from Tipton is now home from hospital after his life-saving bone marrow transplant.
He'll be kept in isolation with limited contact with others until his immune system is working normally and there's less chance of an infection.
He needs to start eating and drinking by mouth as he's currently taking in all nutrients via a tube.
Gaurav has a programme of work planned with physiotherapists to help him get moving about again. At the moment he struggles to sit up on his own for long periods of time and isn't crawling, walking or climbing at all.
We're relieved that a chapter has ended.....[but] sad that the little boy we have brought home is nothing like the boy we took in. So so thankful to God for giving us this chance of a future with our son - and for Kiran her brother. Gaurav is on the road to recovery and we hope that being home will now help further with this.
The family of Gaurav Bains say they could not believe the news that a matching donor was found for their son.
Sunny Bains, Gaurav's father, has stated his feelings towards the donor as 'overwhelming'.
When we were told that there was a matching donor, we just could not believe it. Our feelings towards Gaurav’s donor are overwhelming because that person is giving Gaurav such an important gift. If I could, I would go to meet Gaurav’s donor right now and give them the biggest hug in the world.
A matching donor means that we can go ahead with Gaurav’s bone marrow transplant. It is a very serious procedure but we know that it will give Gaurav the best possible chance at survival. We hope that having the support of those around us will give us the strength we will need to get through the challenges ahead.
A matching donor has been found for a two-year-old from Tipton, who has a rare blood disorder, Monosomy 7 Syndrome.
Gaurav Bains was diagnosed in June this year, and doctors told the boy’s family that without a bone marrow transplant before Christmas, he would be likely to develop an aggressive form of childhood leukaemia.
The family have been working with blood cancer charity, Anthony Nolan, to appeal for potential donors to come forward.
Gaurav is set to have a bone marrow transplant in December.
The family of a two-year-old boy in desperate need of a bone marrow transplant are holding an event in Birmingham today to encourage members of the Asian community to become donors.
Gaurav Bains has a serious blood disorder and needs to find a stem cell donor in the next week or so. His family and parents are holding a fund raiser at the Nishkam Centre in Birmingham today as they try to find ways to save their son.
They are asking people in the community to get tested to see if they may be a match.