A powered wheelchair user from Leicester is backing a national campaign to improve wheelchair services.
A new report by a muscular dystrophy charity said waiting times for specialist wheelchairs are too long, and more financial help for those needing chairs was needed.
23-year-old Vivek Gohil shared his experience as part of the new report, 'Get Moving'.
When I was ten I was bedbound for eight months owing to delays in receiving an appropriate chair. Thirteen years on I'm still hearing of people who are having the same problems. I have a muscle-wasting condition and need proper support for my spine. It is just not possible to get a specialised wheelchair that is suitable for me on the NHS - the basic wheelchairs leave you feeling uncomfortable and in constant pain.
Last year I was lucky enough to receive a specialised chair which cost £19,500 - fully funded by charity money. There is no way I would be able to afford this out of my own pocket - the chair is four times more expensive than my sister's first car. The NHS cannot continue to keep quiet on the topic of funding these wheelchairs. They are a necessity, not a luxury.
– Vivek Gohil
The report, launched by the charity Muscular Dystrophy Campaign, collated the experience of 600 people affected by muscular dystrophy and related conditions.
Campaigners from the East Midlands will meet with MPs and NHS leaders in London today, demanding improved wheelchair services.
It comes after a new report by the charity Muscular Dystrophy Campaign said waiting times for specialist wheelchairs are too long, and more financial help for those needing chairs was needed.
23-year-old Vivek Gohil from Leicester is one of hundreds of disabled people who shared their experience of wheelchair services for the report.
The 'Get Moving' report, which collated the experiences of 600 people, revealed that many people with severe, muscle-wasting conditions are facing waiting times of six months for their first powered wheelchair or replacement chairs, with 15% of people waiting more than a year.