Steve Humphries, father of 14 year-old Joe Humphries, who died last October from SADS (Sudden Adult Death Syndrome), is part of a team cycling 624 miles around Rutland Water to raise awareness of the condition. Joe was from Rothley in Leicestershire.
624 is the average number of young people who die from SADS each year.
The family of a teenage boy who died suddenly last year after his heart stopped beating has set up a Memorial Trust to raise awareness about a condition called Sudden Ar-rhythmic Syndrome.
Joe Humphries' parents and Martin Johnson, the former England and Leicester Tigers captain, launched the charity this morning. They want to highlight the fact that 12 young people die each week from undiagnosed heart problems.
School friends of Joe Humphries have made a tribute to him and his life.
Joe was out jogging, training for a charity fund raiser, in his home town of Rothley in October last year when he suddenly, without symptoms or warning, collapsed and died. He had suffered a Sudden Cardiac.
In his memory his mother and father have set up The Joe Humphries Memorial Trust, launched by Martin Johnson CBE at his school, De Lisle Catholic Academy, today.
The trust aims to educate young people about sudden unexpected death in young people, in particular Sudden Death in Adults across Leicester and Leicestershire.
The Joe Humphries Memorial Trust aims to promote awareness of sudden unexpected death in young people, in particular Sudden Death in Adults across Leicester and Leicestershire.
They want to work towards providing expert assessment or screening services for suspected or undiagnosed cardiac conditions with a particular focus on 12-35-year-olds and provide education and training for young people on how to react to unexpected life-threatening situations.
They also want to inspire young people to fulfil their potential and develop their talents beginning with an after-school Photography Club at De Lisle College.
The Joe Humphries Memorial Trust has been launched by Martin Johnson CBE.
Joe was out jogging, training for a charity fundraiser in his home town of Rothely, in October last year, when he suddenly, without symptoms or warning collapsed and died.
He had suffered a Sudden Cardiac.
The 14-year-old was described by his dad as 'a gentle, loveable and humble giant who in his very short life touched the hearts and minds of so many people.'