Fields Taylor's parents hope a special high fat diet recommended by a dietician at Leicester Royal Infirmary Hospital will stimulate the parts of her brain which are not working as well as they should.
Three-year-old Fields from Melton Mowbray cannot walk or talk because of her illness.
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Further snow showers are expected to continue through the morning, easing somewhat during the afternoon.
Strong, bitterly cold winds, with sunny intervals and scattered snow showers.
Old Market Square in Nottingham was a blaze of orange, green and white as hundreds brave the blizzard-like conditions.