Mum sets up foundation to help seek cure for daughter's rare disorder

A mother from St Helens has set up a charitable foundation to help raise funds to research and look for a possible cure into her daughter's rare genetic disorder.

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Foundation set up in daughter's name to seek cure for rare genetic disorder

Kathy Adams set up the Melissa Adams Angelman Foundation with the aim of funding research and a possible cure for her daughter's rare genetic disorder. Melissa can't talk and so communicating with her family is hard and as she grows older her epilepsy is getting worse. The condition is very rare with just one-in-20,000 diagnosed. Her mother now hopes their foundation can raise the funds for a possible cure.

Melissa is always smiling - one of the symptoms of the disorder Credit: Kathy Adams

If you want to find out more details then you can go to the Melissa Adams Angelman Foundation.


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