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Eleven year old Melissa Adams from St Helens has a condition called Angelman syndrome. Her parents have set up a charity in her name in the hope of raising awareness and one day - find a cure. If you want more details you can find them at the Melissa Adams Angelman Syndrome Foundation
Kathy Adams set up the Melissa Adams Angelman Foundation with the aim of funding research and a possible cure for her daughter's rare genetic disorder. Melissa can't talk and so communicating with her family is hard and as she grows older her epilepsy is getting worse. The condition is very rare with just one-in-20,000 diagnosed. Her mother now hopes their foundation can raise the funds for a possible cure.
If you want to find out more details then you can go to the Melissa Adams Angelman Foundation.
Latest ITV News reports
Kathy Adams has set up a foundation to research Angelman's Syndrome - her daughter Melissa suffers from this rare genetic disorder