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New 'hope' for boy with muscle wasting disease

The parents of a seriously ill boy say that Government plans to fast-track new drugs are offering them some badly needed hope for the future.

Jack Johnson, from Orrell near Wigan, has the incurable muscle wasting disease Duchenne Muscular Dystrophy.

Today, the Government said they would allow new medicines to be tried out on patients years earlier than normal.

Duchenne parents welcome 'fast track' drugs plan

The parents of a young boy from Greater Manchester, with an incurable muscle-wasting disease, have welcomed a plan to fast-track new treatments into the NHS.

Five-year-old Jack Johnson, from Orrell, has Duchenne Muscular Dystrophy. The condition attacks every muscle in the body and eventually stops the heart. Most people with DMD do not live beyond their teens or 20s.

Jack's parents are delighted that Health Secretary Jeremy Hunt has published details of a scheme to get promising drugs prescribed, even before they have been granted a licence for use.

The 'Joining Jack' campaign, named in the youngster's honour, is raising funds for research into Duchenne.


Joining Jack legends head for Dubai

A team of rugby legends are competing in the Dubai Sevens to help raise awareness of Duchenne muscular dystrophy.

Five-year-old Jack Johnson, the son of former Wigan rugby league star Andy, suffers from the muscle-wasting disease for which, as yet, there is no cure.

Two years on from setting up the Joining Jack campaign, thousands of pounds has been raised for research into the illness.

Find out more about the charity's work at

Liverpool woman's bid to be with dying husband

A woman from Merseyside is desperate to make it to her husband's bedside before he dies.

Scott Sands has been given just days to live after the muscle wasting disease he suffers from took a turn for the worse. He lives in Florida but his wife who has the same illness lives in Liverpool.

Rebecca Sands is now hoping someone will help her find the money she needs to get back to America after she was forced to come home for treatment herself a few weeks ago. Gregg Easteal reports:

Join Jack campaign

Former rugby league star Andy Johnson is hoping to find a cure for his son Jack.

The 4 year old has Duchenne Muscular Dystrophy, a terminal muscle wasting condition.

The former Wigan player has started a campaign called Join Jack, to raise awareness and money to find a cure.

Chris Hall reports.

You can find out more about the campaign - click here



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