The parents of a young boy from Greater Manchester, with an incurable muscle-wasting disease, have welcomed a plan to fast-track new treatments into the NHS.
Five-year-old Jack Johnson, from Orrell, has Duchenne Muscular Dystrophy. The condition attacks every muscle in the body and eventually stops the heart. Most people with DMD do not live beyond their teens or 20s.
Jack's parents are delighted that Health Secretary Jeremy Hunt has published details of a scheme to get promising drugs prescribed, even before they have been granted a licence for use.
The 'Joining Jack' campaign, named in the youngster's honour, is raising funds for research into Duchenne.
A team of rugby legends is flying out to Dubai to take part in a sevens competition and raise charity funds. Kris Radlinski and Martin Offiah are amongst the big names aiming to raise funds and awareness of Duchenne Muscular Dystrophy.