For more information go to the Rett Syndrome Research Trust UK website.
You can also find out about the work of Claire House Hospice at www.claire-house.org.uk.
More top news
Showers or longer spells of rain. Severe gales on Sunday with storm force winds for coasts and hills
Tyson Fury plans to give his fans a song when he's finished with world heavyweight champion Wladimir Klitschko on Saturday night.
Often very windy, especially as we head into Sunday, with rain or showers. Met Office 'Be Aware' warnings have been issued