For more information go to the Rett Syndrome Research Trust UK website.
You can also find out about the work of Claire House Hospice at www.claire-house.org.uk.
More top news
A British man was grounded in Bermuda as his new wife continued to Cuba without him after drunkenly threatening the flight crew.
Police forces in Greater Manchester and Merseyside have reported a rise in the number of violent homophobic offences so far this year.
Grey and damp. Cloudy with outbreaks of rain, making it feel cold. Hill fog