The mother of twin four-year-old boys, who both face losing the ability to walk normally, says she's been overwhelmed by the public support for her family.
Thousands of pounds have been raised to help Luke and Jack Hickey from Liverpool.
The money is paying for surgery unavailable on the NHS.
And today Granada Reports was at Alder Hey Children's Hospital where Luke faced a life-changing operation.
Amy Welch has this exclusive report;