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Mother's plea for drug which could help her disabled son

A mother from Welwyn Garden City is urging the NHS to allow the use of a drug which could help her disabled son.

Seven-year-old George Lockley has Spinal Muscular Atrophy which means he uses a wheelchair and is slowly getting weaker. There is a trial drug called Spinraza which could help him.

But NHS England say they can't provide it until it's been approved by the medicines regulator NICE.

As a parent it's incredibly difficult to watch your child struggle and lose strength as they grow. And, to me it's become even harder because there is something that can be done. There is a drug that could prevent this from happening, yet George isn't able to have it - and it's heartbreaking.

– Liz Lockley, George's mother