One year old Carina has cardiomyopathy which damages the heart. She spent her first birthday last week completely sedated on life support at the Royal Brompton where she is waiting a heart transplant.
She became the youngest child to be fitted with a mini defibrillator (ICD) in her chest in November at just 9 months old. The device gives her heart a shock if its rhythm worsens.
Carina can only receive a heart from a one year old to a small five year old. The average waiting time for a heart is around 3 months and the family have now been waiting three months.
Her father Darren Marcangelo is urging the government to create an opt-out organ donation scheme instead of the current opt-in system. He'll be speaking to London Tonight at 6pm.
More top news
Goals from Charlie Austin, Dusan Tadic and James Ward-Prowse consigned Slaven Bilic's men to their fourth straight Premier League loss.
A bizarre protest against BP sponsorship at the British Museum used theatre, sea shanties and 'mermaids' to 'summon a Kraken'.
Two men have been jailed for robbing a man aged 79 as he was washing his car.