One year old Carina has cardiomyopathy which damages the heart. She spent her first birthday last week completely sedated on life support at the Royal Brompton where she is waiting a heart transplant.
She became the youngest child to be fitted with a mini defibrillator (ICD) in her chest in November at just 9 months old. The device gives her heart a shock if its rhythm worsens.
Carina can only receive a heart from a one year old to a small five year old. The average waiting time for a heart is around 3 months and the family have now been waiting three months.
Her father Darren Marcangelo is urging the government to create an opt-out organ donation scheme instead of the current opt-in system. He'll be speaking to London Tonight at 6pm.
More top news
A rapist has been given three life sentences for a vicious attack on an 81-year-old woman minutes after he sat next to her on a bus.
When he was starting out Anthony Joshua accidentally broke his coach's wrist — and Sean Murphy still has the scars to prove it.
The verdict stemmed from ugly scenes which marred the Capital One third-round tie at Selhurst Park in September 2015.