One year old Carina has cardiomyopathy which damages the heart. She spent her first birthday last week completely sedated on life support at the Royal Brompton where she is waiting a heart transplant.
She became the youngest child to be fitted with a mini defibrillator (ICD) in her chest in November at just 9 months old. The device gives her heart a shock if its rhythm worsens.
Carina can only receive a heart from a one year old to a small five year old. The average waiting time for a heart is around 3 months and the family have now been waiting three months.
Her father Darren Marcangelo is urging the government to create an opt-out organ donation scheme instead of the current opt-in system. He'll be speaking to London Tonight at 6pm.
More top news
Members of the London community have rallied round to offer their help to residents of the evacuated Chalcots estate in Camden.
Evacuated residents have expressed anger and confusion at unexpectedly being told they had to leave .
Camden Council is evacuating four tower blocks in the Chalcots estate in north London, to allow "urgent fire safety works" to take place.