'Boys to Men' campaigners lobby PM

Duchenne campaigners
Boys campaign for better treatments and more research into their condition Photo: ITV

A group of boys have taken to the streets of Westminster in their fight for more finding to improve treatment and research into their genetic condition. The boys are disabled. They have Duchenne Muscular Dystrophy. The severe genetic childhood condition means they may not live to see manhood.

Joined by their families and friends, the demonstrators took their campaign called 'Boys to Men' to the door of Ten Downing Street. Our reporter Kerry Swain went with them.