Television and radio presenter Toby Anstis is backing a campaign to raise awareness of Cystic Fibrosis.
He met toddler Tilly Kay, who has Cystic Fibrosis, at an event in Liphook, Hampshire.
The event, was organised to promote the ‘Breathe With Me’ Strawfie Challenge in support of the Cystic Fibrosis Trust.
For more information go to www.breathewithme.info
A young woman from Kent has become the first British Cystic Fibrosis patient to receive stem-cell treatment and she believes it will make a difference to her life. Roisin Kelleher O'Callaghan from Faversham flew to the Dominican Republic to have the procedure, which cost £35,000. The money was raised by family, friends and wellwishers. Now she's campaigning for the treatment to be available on the NHS. But Cystic Fibrosis experts here say it's untested and carries its own risks. Tom Savvides talks to Roisin and her mother Anntoinette Kelleher.
A mother of a three-year-old girl with cystic fibrosis is trying to raise thousands of pounds for equipment which will help her daughter to breathe easier. A vibrating vest will help clear her airways and improve her quality of life. Tom Savvides talks to Becky Mann, the mother of Isabella Henderson, and to Jeremy Marris from the charity Tree of Hope in Tunbridge Wells.
The friends of a young woman with cystic fibrosis who died last month are holding a special fund raising event tonight in her memory.
Samantha Jo Turl was only 23 when she died. She worked at the Vue cinema in Eastleigh where friends have organised a special Dr Who evening. As well as 50th anniversary screenings of Dr Who, there'll be fancy dress, a raffle and a visiting Dalek. Her friend Oonagh paid tribute to her:
The money raised will go to the Cystic Fibrosis Trust.
A teenager from Romsey is one of six stars of a film raising awareness for the Cystic Fibrosis Trust.
15-year-old Cicely Mathews was chosen to take part in the video because of her history of fundraising for the Trust and writing her own blog (thegirlwithcf.blogspot.co.uk).
Cicely was diagnosed with cystic fibrosis when she was 15 months old after having bowel problems.
Every day she takes lots of tablets, breathes in drugs through a nebuliser and doing physiotherapy.
The video aims to help other teenagers who don't have cystic fibrosis to understand what the genetic condition means for young people.
Cicely said: "I really enjoyed doing the film, it's great to know this will help raise awareness for CF."
A young woman has been told the NHS will now pay for a drug to treat her lung disorder. Amy Lloyd, from Kent, has Cystic Fibrosis. She currently takes a cocktail of medicines - they will now be replaced by a single drug. Tom Savvides talks to Amy, her mother and Ed Owen from the CF Trust.