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TV presenter and toddler start Cystic Fibrosis campaign

Television and radio presenter Toby Anstis is backing a campaign to raise awareness of Cystic Fibrosis.

He met toddler Tilly Kay, who has Cystic Fibrosis, at an event in Liphook, Hampshire.

Cystic Fibrosis campaign Credit: Breathe With Me

The event, was organised to promote the ‘Breathe With Me’ Strawfie Challenge in support of the Cystic Fibrosis Trust.

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  1. Tom Savvides

Cystic Fibrosis patient receives stem cell treatment

A young woman from Kent has become the first British Cystic Fibrosis patient to receive stem-cell treatment and she believes it will make a difference to her life. Roisin Kelleher O'Callaghan from Faversham flew to the Dominican Republic to have the procedure, which cost £35,000. The money was raised by family, friends and wellwishers. Now she's campaigning for the treatment to be available on the NHS. But Cystic Fibrosis experts here say it's untested and carries its own risks. Tom Savvides talks to Roisin and her mother Anntoinette Kelleher.


  1. Tom Savvides

Vibrating vest could help young girl breathe

A mother of a three-year-old girl with cystic fibrosis is trying to raise thousands of pounds for equipment which will help her daughter to breathe easier. A vibrating vest will help clear her airways and improve her quality of life. Tom Savvides talks to Becky Mann, the mother of Isabella Henderson, and to Jeremy Marris from the charity Tree of Hope in Tunbridge Wells.

Dr Who tribute in memory of cystic fibrosis campaigner

The friends of a young woman with cystic fibrosis who died last month are holding a special fund raising event tonight in her memory.

Samantha Jo Turl was only 23 when she died. She worked at the Vue cinema in Eastleigh where friends have organised a special Dr Who evening. As well as 50th anniversary screenings of Dr Who, there'll be fancy dress, a raffle and a visiting Dalek. Her friend Oonagh paid tribute to her:

The money raised will go to the Cystic Fibrosis Trust.

Romsey teen star of cystic fibrosis film

A teenager from Romsey is one of six stars of a film raising awareness for the Cystic Fibrosis Trust.

15-year-old Cicely Mathews was chosen to take part in the video because of her history of fundraising for the Trust and writing her own blog (

Cicely was diagnosed with cystic fibrosis when she was 15 months old after having bowel problems.

Every day she takes lots of tablets, breathes in drugs through a nebuliser and doing physiotherapy.

The video aims to help other teenagers who don't have cystic fibrosis to understand what the genetic condition means for young people.

Cicely said: "I really enjoyed doing the film, it's great to know this will help raise awareness for CF."

Cystic fibrosis often goes unnoticed in young people as they look so well on the outside, this also makes it harder for people to understand the burden of living with this condition. We are grateful to Jeans for Genes for their support in funding this video which aims to break down the stigma of having a life-shortening condition with young people and their peers.”

– Jacqueline Ali, Head of Information and Support at the Cystic Fibrosis Trust