The friends of a young woman with cystic fibrosis who died last month are holding a special fund raising event tonight in her memory.
Samantha Jo Turl was only 23 when she died. She worked at the Vue cinema in Eastleigh where friends have organised a special Dr Who evening. As well as 50th anniversary screenings of Dr Who, there'll be fancy dress, a raffle and a visiting Dalek. Her friend Oonagh paid tribute to her:
A teenager from Romsey is one of six stars of a film raising awareness for the Cystic Fibrosis Trust.
15-year-old Cicely Mathews was chosen to take part in the video because of her history of fundraising for the Trust and writing her own blog (thegirlwithcf.blogspot.co.uk).
Cicely was diagnosed with cystic fibrosis when she was 15 months old after having bowel problems.
Every day she takes lots of tablets, breathes in drugs through a nebuliser and doing physiotherapy.
The video aims to help other teenagers who don't have cystic fibrosis to understand what the genetic condition means for young people.
Cicely said: "I really enjoyed doing the film, it's great to know this will help raise awareness for CF."
Cystic fibrosis often goes unnoticed in young people as they look so well on the outside, this also makes it harder for people to understand the burden of living with this condition. We are grateful to Jeans for Genes for their support in funding this video which aims to break down the stigma of having a life-shortening condition with young people and their peers.”
– Jacqueline Ali, Head of Information and Support at the Cystic Fibrosis Trust
A young woman has been told the NHS will now pay for a drug to treat her lung disorder. Amy Lloyd, from Kent, has Cystic Fibrosis. She currently takes a cocktail of medicines - they will now be replaced by a single drug. Tom Savvides talks to Amy, her mother and Ed Owen from the CF Trust.