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I am 6, my legs are poorly - Mr Cameron, could you help us to get the medicine?

A moving letter from one of the children Credit: @MDUK

Six young boys with the muscle wasting condition Duchenne Muscular Dystrophy went to Downing street today to deliver letters to David Cameron.

They are pleading with the Prime Minister to speed up access to a drug that may help them walk for longer.

Full report on our website later.

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Families' plea over drug delay

It's hailed as a breakthrough drug that can slow down the affects of a severe and progressive muscle wasting disease.

But the families of boys who suffer from Duchenne Muscular Dystrophy say it's taking too long for funding to be made available on the NHS.

The drug, Translarna, is already available for sufferers in Europe. The Government today said a decision of funding could be made by the end of this month.

But the family of Jagger Curtis from Romsey fear time is running out to improve the quality of his life.

MP for Romsey and Southampton North, Caroline Nokes raised a question in the House of Commons.

Best friends to walk 33km to raise money for classmate with Duchenne Muscular Dystrophy

Best friends India Brodie and Lily Kirkland to walk 33km to raise money for classmate with Duchenne Muscular Dystrophy Credit: Bluebird PR

Two best friends from Cobham in Surrey are taking part in a 33km walk on the Isle of Wight to raise money for a friend and old classmate who has Duchenne Muscular Dystrophy.

Cobham Free School pupils India Brodie and Lily Kirkland, both aged 12, are hoping to raise £1,000 for charity Harrison’s Fund, by taking part in the Isle of Wight Challenge on Saturday 2 May. The event is 106km of coastal paths, ups and downs, around the Isle, where participants can walk, run or jog. The girls are walking a quarter of it.

The charity is named after the eight year old from Surrey who was diagnosed with Duchenne Muscular Dystrophy, a fatal genetic condition that affects the muscles, causing muscle weakness. The charity’s goal is to get as much money as possible into the hands of the world’s best researchers, who are working to find a cure for Duchenne.

To support Lily and India please visit https://www.justgiving.com/lilyandindia

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