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Families' plea over drug delay

It's hailed as a breakthrough drug that can slow down the affects of a severe and progressive muscle wasting disease.

But the families of boys who suffer from Duchenne Muscular Dystrophy say it's taking too long for funding to be made available on the NHS.

The drug, Translarna, is already available for sufferers in Europe. The Government today said a decision of funding could be made by the end of this month.

But the family of Jagger Curtis from Romsey fear time is running out to improve the quality of his life.

MP for Romsey and Southampton North, Caroline Nokes raised a question in the House of Commons.


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