A teenager who lives with constant pain from a condition that attacks her nerves, says the condition has not stopped her representing Britain at judo in this summer's Special Olympics.
Now, with the help of Fixers - the campaign that gives young people a voice - a 17-year-old from Winchelsea in Sussex wants better understanding for victims of her hidden illness.
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Holly has the latest forecast for the east of the region.
Holly has the latest forecast for the west of the region.
People could suffer vision loss or infection from the lenses, which are often sold illegally online, in shops and on market stalls.