A teenager who lives with constant pain from a condition that attacks her nerves, says the condition has not stopped her representing Britain at judo in this summer's Special Olympics.
Now, with the help of Fixers - the campaign that gives young people a voice - a 17-year-old from Winchelsea in Sussex wants better understanding for victims of her hidden illness.
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Amanda Houston has Wednesday's forecast for the west of the region.
Amanda has Wednesday's forecast for the east of the ITV Meridian region.
Amanda Houston has the lunchtime forecast for the west of the ITV Meridian Meridian region.