A teenager who lives with constant pain from a condition that attacks her nerves, says the condition has not stopped her representing Britain at judo in this summer's Special Olympics.
Now, with the help of Fixers - the campaign that gives young people a voice - a 17-year-old from Winchelsea in Sussex wants better understanding for victims of her hidden illness.
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Tuesday night's weather for the west of the region
Tuesday night's weather for the east of the region