One in three adults with severe M.E. has no access to local specialist services according to researchers at the University of Southampton.
They say a third of the units dedicated to patients with Chronic Fatigue Syndrome nationwide, aren't providing the care that's recommended for housebound patients, primarily due to a lack of funding.
It's estimated around 250,000 people in the UK have the condition.
Clare McDermott who led the study said:
People with ME should be able to seek the advice of a specialist service close to their homes. We were surprised by the lack of services and access to services that our survey revealed. Even if the local Trust provides a service, some housebound patients will never get to use it. Many, very ill patients are going without."
More top news
The latest weather for the east with Philippa
The latest weather for the west with Philippa
Scientists in Portsmouth are asking the public to keep an eye on the love lives of lugworms as part of a research project.