Information warning parents of the symptoms of a brain tumour should be included in the every Personal Child's Health Book, or "red book", health campaigners say.
Charity HeadSmart are calling on the Government to do more to inform parents of what to look for should their children develop a brain tumour.
Brain tumours 125 children and young adults in the UK every year, and at least 60% of the 500 diagnosed end up disabled.
The UK is lagging behind western Europe when diagnosing brain tumours in patients aged between 2-24-years-old, with data showing Britain is 50% slower than the rest of the continent.
At least 500 young adults and children are diagnosed with a brain tumour and 125 are killed by them each year, charity HeadSmart says.
World Health Organisation (WHO) statistics show that the UK has the highest number of child deaths compared to other Western European countries.
Health campaigners are calling on Parliament to do more to help children and young adults who may be suffering from a brain tumour.
HeadSmart's credit-card sized guide lists the common signs and symptoms of brain tumour in children and young people across three age ranges.
Sacha Langton-Gilks is involved in the HeadSmart campaign which aims to raise awareness of the symptoms of brain tumours in children and young people.
- Medulloblastoma is a type of brain tumour which mainly affects children and young people.
- Symptoms could include persistent and recurrent vomiting, balance, co-ordination and walking problems, abnormal eye movements and fits or seizures.
- Half of all children and young people identified as having a brain tumour take longer than three months to be diagnosed, a charity warned.
- The HeadSmart campaign aims to reduce this diagnosis time to help reduce the long-term effects.
Sacha Langton-Gilks, whose 16-year-old son David has just days to lives after a long-running battle with a brain tumour, speaks to ITV News in a bid to raise awareness of the symptoms and to increase the chances for other children.
Speaking to Mark Nightingale she said the condition kills two coach loads of children every year and youngsters are as likely to get a brain tumour as meningitis.