Ruth Owen, the chief executive of Whizz Kidz has said that children have become "isolated" because local authorities are not giving the right equipment on time.
Nathan Mattick, 16-years-old with cerebal palsy said that the report from the Care Quality Commission regarding the wait for disability provisions were 'shocking', saying that "people are left stranded" without wheelchairs.
Sue McMillan, Head of Operational Improvement of the Care Quality Commission has said that the report on services for disabled children was 'significant', in order for commissioners to 'benchmark themselves' against others.
Public Health Minister Anne Milton has said that long waits for aids such as wheelchairs was unacceptable and that the Government would take action. Ms Milton said that she expected the local NHS to have services in place to meet the needs of families. She said:
"That is why we are taking a radical new approach to integrate services across a child's education, health and care needs. We will set out our plans on this shortly".
Sue McMillan, of the Quality Care Commission, said disabled children have complex health needs and commissioners should be managing them better.
This review gives disabled children and their families the tools they need to hold their local commissioners to account.
We were disappointed a proportion of PCTs were unable to provide the data we asked for and we're calling on them to improve the information they hold.
If commissioners don't have information about the children and services they're responsible for, how do they know they are meeting the needs of their communities?
The Care Quality Commission report also showed the national average wait for a referral for community physiotherapy was seven weeks, with some children waiting up to six months.
The average wait for a referral to a community occupational therapist was 15 weeks with the wait ranging up to two years.
Disabled children and their families sometimes wait for up to a year for aids such as wheelchairs, a social care watchdog review has found.
The Care Quality Commission (CQC) found there were considerable variations in services provided in England with the national average wait for powered wheelchairs at three months.