Nicole and Jessica Rich are sisters with the same rare life-limiting disease.
Every few weeks their parents are having to travel hundreds of miles from Newcastle to different hospitals for treatment.
Emily Reader reports:
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The North East has the highest number of drug misuse deaths in the country.
Figures from the Office of National Statistics show there were 191 deaths in the region last year, a 13% increase compared with 2015.
It is the fourth consecutive year that the North East has had the highest mortality rate from drug misuse.
Middlesbrough and Hartlepool were among the five local authorities with the highest rates in 2014-16.
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