We're very worried that the clock is ticking for future bowel cancer patients.
The uncertainty around how these drugs will be funded in the years to come will mean patients who could benefit from having treatment in the future, may be denied access because the money isn't there to fund it.
It is vital that the funding remains in place to ensure that bowel cancer patients will continue to get access to the drugs which their doctors say they need on the NHS.
Without it we fear patients' lives will be put at risk. We simply can't go backwards to a time when cancer patients had to beg for life-extending treatment.
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"I definitely get less money than a male in my situation would," she said. "Definitely."
Muscular Dystrophy UK said the lack of an option to label abusive tweets based on disability was preventing more reporting.