Carers are feeling increasingly vulnerable because they have not had enough training on the basics, like changing bandages or administering injections, a leading health charity found.
One such carer, Pamela Digney, from Lincolnshire, spoke to Macmillan about the challenges she faces looking after her husband Roy, 75, who had cancer removed from his spine:
My husband is paralysed from the waist down from his operation, so I have to help him with everything.
I have to administer morphine patches and liquid morphine for pain relief, as well as help him with his catheter. Infection control is also a constant concern.
I haven't been given adequate training or information to help with these things, and it leaves you feeling quite vulnerable when you have to do them on your own.
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White House budget officials outlined the information during a telephone call with reporters given on condition of anonymity.