Edward Sherley-Price, whose 11-year-old daughter Alysia has been diagnosed with a genetic condition, said he hopes a "landmark" genome project will help her in the future.
Mr Sherley-Price told Good Morning Britain, "Now we've got this diagnosis we are at the very first rung of possibly many rungs of the ladder.
"With the genome project we can really think about ... focusing on the research on the condition that Alysia has got.
"Hopefully in months and years to come more and more potential answers ... are going to come to fruition and maybe help Alysia in the future."
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