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The Welsh Government spends more on health services than anything else but, as budgets get tighter, tough decisions have to be made - and now parents say their children are missing out on life-changing operations routinely funded in England.
Helen Morgan from Monmouth is one of them.
Her daughter, Chase Vaughan, is a happy and playful seven year old girl, but the nerves in her legs are over active because she has Cerebral Palsy. Her condition causes severe tightness in her muscles known as spasticity, so she has to wear leg braces, and after just a few minutes of playing, Chase gets exhausted and frustrated.
As she gets older her condition is deteriorating.
Helen wants her daughter to have a pioneering operation called Selective Dorsal Rhizotomy, or SDR, which she thinks could change Chase’s life - but the procedure has never been funded by the NHS in Wales.
That’s why the group 'Support for SDR Wales' is campaigning on their behalf.
Last November they marched through Cardiff Bay, to hand a petition to the Welsh government, calling for the procedure to be made available on the NHS.
But experts at the Welsh Institute for Health and Social Care say pressure on health care spending is increasing.
There is still little evidence about how well the procedure can maintain improvements in the long term. That’s why the team at Frenchay Hospital in Bristol is collating information for a national research programme, which compares the results to other procedures for children with Cerebral Palsy.
Jenny Smith is one of the physiotherapists involved.
NHS England has now said funding may be provided later this financial year for a small group of patients to specifically gather more information about the operation as part of a formal evaluation. Here in Wales the government has said it plans to be part of that process - but no commitment has been made to paying for the procedure.
The Health Minister has released a statement saying he has 'every sympathy for the families of children with cerebral palsy’, but he says SDR is ‘not routinely given on the NHS here because of a lack of clinical evidence'. It went on to say that 'if clinicians do think their patients would benefit, they can apply for treatment via the Individual Patient Funding Request (IPFR).'
But the IPFR hasn’t funded a single case in Wales.
Tonight, Wales This Week follows Helen Morgan and her daughter Chase as they fight for the operation which could transform Chase's life.[