ME recognition & care 'lacking'

People with the condition ME in Wales say they suffer from an absence of specialist care, and have found a lack of sympathy and knowledge in the NHS and social services. The Welsh Government has admitted progress has not been universal around Wales.

Latest ITV News reports

Welsh Govt: 'Progress not universal across Wales'

The Welsh Government says "progress has not been universal across Wales" since it published a care strategy for the treatment of patients with ME in 2011.

The Welsh Government requires Health Boards to put in place measures to ensure prompt diagnosis and treatment for patients with ME. A care pathway was set out in 2011, with the involvement of the Chronic Fatigue Syndrome Task and Finish Group commissioned by the Minister for Health and Social Services in 2010.

Last year, the Welsh Government asked all Health Boards for updates on service developments since the publication of this guidance. The responses received show that there have been some improvements, but that progress has not been universal across Wales.

Therefore the Task and Finish Group will be reconvened this year to consider how services can be further developed to meet the needs of people with CFS and ME in Wales.

– Welsh Government spokesperson


ME 'the most common neurological condition'

The charity The Welsh Association of ME & CFS Support says there are an estimated 12,000 people in Wales, making it the most common neurological condition.

  • ME – Myalgic Encephalomyelitis - is a condition which affects the brain
  • There is no agreement over what to call it - it is often referred to as Chronic Fatigue Syndrome
  • There is currently no single identifiable cause
  • Symptoms fluctuate - they are varied, and worse after physical and mental exertion
  • A small percentage of people make a complete recovery over time
  • There is currently no cure

It is currently ME Awareness Week.

The Welsh Association of ME & CFS Support has more information on the condition