Muscular dystrophy funding

People who suffer with muscular dystrophy are campaigning for more NHS funding in care services, which they are calling "desperately overstretched."

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NHS facing 'significiant' financial challenges

Families from across Wales will be gathering at the Assembly today to demand NHS funding for rare muscular conditions.

The Welsh Government says the NHS is facing "significant" financial challenges.

In a recent meeting with the Muscular Dystrophy Campaign to discuss the Welsh Neuromuscular Network Vision Document, the Health Minister referred to the significant challenges facing the NHS in Wales and that these challenges would continue for some time to come.

While he expressed his support for their work, the Health Minister also acknowledged any developments in services would have to come about from new ways of working as it is unlikely any additional financial resource will be available.

We understand that patients with a long term neurological conditions such as muscular dystrophy need access to complex and well co-ordinated services. This is why we commenced last week a consultation on a draft Neurological Conditions Delivery Plan. We urge the Campaign and indeed all individuals with an interest in neurological conditions to contribute."

– Welsh Government Spokesperson

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'Funding shortfall' for muscular-wasting condition

Muscular dystrophy causes muscles to waste and weaken over time Credit: Muscular Dystrophy Campaign

People who suffer with muscular dystrophy are campaigning for more NHS funding in care services, which they are calling "desperately overstretched."

Patients, assembly members and health professionals are calling for an investment of £650,000 to cover the current shortfall of care services.

A report by the Welsh Neuromuscular Network has found a lack of specialist health workers is leading to high rates of emergency care.

Campaigners are meeting at the Senedd today to present the report's findings to the Welsh Government.

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