Mother raises awareness of her son's rare skin condition

18-month-old Geraint Burns from Neath has Mastocytosis - a rare skin condition that affects only 3 children in the UK. His mum has now started handing out leaflets to raise awareness of his condition.

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Mother raises awareness of rare skin condition

The mother of a baby from Glynneath has been forced to hand out leaflets about her son's rare skin condition, after strangers thought he'd been burned.

18-month-old Geraint suffers from an incurable skin problem which has left his body covered in blisters.

His mum Angharad is trying to raise awareness of the condition in the hope that there will one day be a cure, as Alexandra Lodge reports.

Toddler's mother raises awareness of skin condition

Angharad Burns is trying to highlight what it's like to live with the condition Credit: ITV News Wales

The mother of a young boy with a rare skin condition has started handing out leaflets to try and raise awareness of his illness.

Geraint Burns has Mastocytosis - a rare skin condition that affects only 3 children in the UK.

His mother Angharad says she was sick of people staring at her son when they left the house.

She said: "We would get comments from total strangers about why he wasn't dressed and what was the matter with his skin. People would ask whether he'd been burnt, or has he got eczema."

She's made special cards which give information about the condition to give to strangers who ask her about Geraint.

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Rare skin condition affects Neath toddler

1 in 500,000 suffer from the condition worldwide. Credit: ITV Wales

18-month-old Geraint Burns from Neath has Mastocytosis - a rare skin condition that affects only 3 children in the UK.

He has too many mast cells due to genetic mutations, which means his body is covered in painful blisters. He has to have medicine 4 times a day to keep the blisters at bay.

Sometimes strangers question whether he has been burnt - forcing his mum, Angharad, to hand out leaflets explaining his condition.

For more info on the condition you can visit the UK Mastocytosis Support Group website here.

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