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Alzheimer's Society: There's a 'desperate shortage' of support for people with dementia

The Alzheimer's Society are calling for more help to ensure no-one in Wales is denied access to information and support, following a diagnosis of dementia.

The charity's 'Right to Know' campaign is also calling for a higher dementia diagnosis rate across Wales, and a guarantee that everyone has access to a Dementia Adviser or equivalent, following a diagnosis.

Many people in Wales face daily challenges whilst living with dementia. It's disgraceful to think nearly two thirds of them have an added fight, to get a diagnosis.

Everyone with dementia has a right to know. To have access to the certainty of a diagnosis and the right support to come to terms with and manage the condition should not depend on your postcode.

– Sue Phelps, Director of Alzheimer's Society in Wales

Calls for more support to help people with dementia

97 per cent of people surveyed by the Alzheimer's Society said the Government should do more to support people with a diagnosis Credit: PA

The Alzheimer's Society is calling for better support to help people with dementia.

The charity, which are launching its 'Right to Know' campaign today, says there is a desperate shortage of support for people with the condition.

A poll carried out by the charity, found one in five people affected by dementia are given no information or support after their diagnosis.

The campaign aims to ensure people with the condition get a diagnosis, as well as access to vital information, support, and available treatments.

More than 45,000 people are currently living with dementia in Wales.

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Hairdressers 'can provide advice on dementia'

by Hannah Thomas

Welsh actress Ruth Jones has today spoken of her family's battle to understand the onset of her mother-in-law's Alzheimer's disease.

It comes as a campaign is launched to raise more awareness of dementia. It is aimed at businesses like hairdressers, in the hope that they can provide customers with advice on where to go for help, if they think they have it.

With an ageing population, Alzheimer's Society says that the number of dementia sufferers could rise by 40 percent in the next decade.

Ruth Jones on her family's experiences with dementia

Welsh actress Ruth Jones is fronting Alzheimer's Society Dementia Awareness Week.

Her mother-in-law Margaret had dementia and she describes her family's experiences in a film made with ITV's Daybreak.

Ruth says: "noticing the gradual decline in her memory and her ability to deal with the day-to-day, that was the most upsetting thing."

"Talking changes everything - it makes the problem less scary - and we all can club together to deal with it."

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Dementia Awareness Week aims to get people talking

It is currently Dementia Awareness Week, running between 19 and 25 May this year.

Alzheimer's Society says it simply wants to get people talking about dementia.

It is using the hashtag #TalkDementia on Twitter, as part of the campaign.

This wordcloud shows what people are saying using the hashtag #TalkDementia on Twitter. Credit: Alzheimer's Society

The charity has an online forum for people to talk to others about dementia and tips about how to raise awareness.

It has also launched 'Five things you should know about dementia': it is not a natural part of ageing; it's caused by diseases of the brain; it's not just about losing your memory; it's possible to live well with dementia; and there's more to a person than dementia.

Go to the Dementia Awareness Week website

See what Alzheimer's Society is talking about on Twitter

New initiative to encourage people to talk about dementia

Alzheimer's Society is encouraging people to talk about dementia to help raise awareness Credit: PA

There's an estimated 45,000 people in Wales living with dementia and over the next 10 years, that figure is expected to rise to 56,000.

In a bid to raise awareness and get people talking about dementia, Alzheimer's Society is launching a new initiative to get hairdressers in Gwent to raise the issue with their customers and provide them with information.

The charity is holding a range of events to mark Dementia Awareness Week.

Dementia 2013: The key statistics

  • People with dementia say they rely on relatives and friends for social contact with almost a quarter (21%) of sufferers speaking to friends and family on the telephone less than once a month
  • Only 28% of people in Wales thought it was possible for someone with dementia to live alone
  • Twelve percent of people in Wales said they felt uncomfortable talking to someone with dementia
  • Nearly two thirds (62%) of 250,000 people with dementia who live on their own are lonely
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