The family of Phoebe Bruce say that she has been awarded the funding so that she can see a specialist to deal with her condition.
Phoebe's mother Yvonne was told about the decision by the Welsh Health Specialised Services Committee last night.
Last week, Phoebe told ITV Wales about her struggle with Elhers-Danos syndrome, a genetic condition caused by a defect in the body's protein collagen.
The family are continuing to raise money to help pay for their accommodation in the event that they have to travel to London for Phoebe's treatment.
More top news
The 47-year-old was formally unveiled as Sunderland manager on Monday morning just days after deciding not to renew his contract with Wales.
Not a particularly pleasant start to the week with wet and windy conditions for much of Wales. But it will feel incredibly mild!
It is understood the FAW are keen to replace Chris Coleman, with a Welshman, putting Pulis right in the frame for vacant post.