The family of Phoebe Bruce say that she has been awarded the funding so that she can see a specialist to deal with her condition.
Phoebe's mother Yvonne was told about the decision by the Welsh Health Specialised Services Committee last night.
Last week, Phoebe told ITV Wales about her struggle with Elhers-Danos syndrome, a genetic condition caused by a defect in the body's protein collagen.
The family are continuing to raise money to help pay for their accommodation in the event that they have to travel to London for Phoebe's treatment.
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Most places will see a dry, bright day with patchy cloud but also some warm sunny spells, and it'll be less breezy than on Friday.
Members of the RMT union are walking out for three days from today in a row over new trains causing disruption to bank holiday services.
The Bank Holiday is here! Which is usually a recipe for wet weather! Yes, we will get our fair share. But it's not all doom and gloom!